Sudden Unexpected Death In Epilepsy (SUDEP)

Epilepsy is a common, chronic neurological disease characterized by repeated, uncontrolled seizures. Sudden Unexpected Death in Epilepsy (SUDEP) is defined as a sudden and unexpected death in a person with epilepsy without any other apparent cause of death (e.g., injury or drowning). No one knows what causes SUDEP, however it occurs most often at night or during sleep and is generally unwitnessed. Current research into the possible causes of SUDEP focuses on problems with breathing, heart rhythm and brain function that occur with a seizure.

The figure lists many of the most common risk factors for SUDEP. The best way to prevent SUDEP is to have the best seizure control possible. This may involve actions such as:

• Medication compliance
• Seizure tracking and regular communication with healthcare team
• Consideration of other treatment options such as epilepsy surgery, devices, or dietary therapy
• Balanced diet, adequate rest and regular exercise, avoiding alcohol and recreational drugs
• Minimize stress, utilizing healthy stress relieving activities
• Awareness/avoidance of potential triggers
• Be seizure safe. Ensure family and co-workers know what to do for seizure first-aid, take extra precautions around water, including swimming and bathing.

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